It has been awhile since I have written in my blog. I will start with today and work my way backwards. I ran into one of my inpatient therapists from when I was in the hospital in January. She had not seen me since the 16th of January, when I had left went home. Outpatient and Inpatient therapists are usually different people.
Anyways, I was in a line waiting today for a taste of a chocolate energy drink when I saw my PT from inpatient @ Spaulding. She looked at me twice and started to get teary eyed. I asked, "do you know who I am" and she replied that she did. She said she was happy to see how well I was doing and hugged me. As I was leaving, the therapist said to go upstairs and make sure the other therapists and nurses saw me.
When I went upstairs, I saw the nurse in charge of my room first. She started to cry. I then went up to talk to the rest of the people. They were all very nice. Spaulding inpatient floor people can be very emotional.
Earlier in the day I had my brain injury group. It is always great to hear another perspective but today was weird. I was shocked to noticed that there was someone in my group that sounds like me. Now that's scary.
Had Cardiac therapy today also. They have increase my workload again-I actually for the first time felt like I had a mild challenge (still mild though).
My brother is still pretty sick (tranverse myelitis) but has stabilzed. My parent are now in Milwaukee with Glenn and are working their way to Baltimore to John's Hopkins as it has the largest transverse myelitis center in the US. Hopefully things will get better, My Mom has been at this for over 3 months now.
The big push forward now is the return to work. I went to visit my company last Friday. I was tempted to drool at the side, limp, pretend I have a tick, etc., but I figured people would be tenative around me anyways. It will be another transition.
My doctor @ Spaulding is working on my formal return to work letter. Spoke to him today and it should go out this week.
After reviewing this blog, there is 1 word I can use to describe it:
TRANSITION
Wednesday, March 25, 2009
Wednesday, March 11, 2009
22nd Entry, March 11th , 2009--The transition begins
3-11
The transition has begun. Currently doing cardiac and anoxia rehab, doctors appointments, ICD clinic and clinic. On Saturday, my mother is going home (if for only a short period of time) and I have my more of my independence back. I am still "T" ing it to the hospitals and clinics. My Mom will be arriving in Colorado on Saturday nite but I believe she will get on a plane next week to help my brother, who is out with transverse myelitis in Milwaukee (see last entry).
I had a good appointment from my anoxia (brain) rehab doctor and my recovery is moving forward. Managing the cardiac continuum (doctors, therapists, clinics, administration, has been more work but I am starting to feel better.
3-16
Mom left on Saturday however now my parents are going to Milwaukee on Friday the 20th of March to help my brother Glenn. My guess is that they are going to Wisconsin for awhile. The first 2 days on my own have been great although it has been a little bit more work. Today I did the brain and heart rehab thing. It is funny because there is this person in my group that makes nicknames up for people in one of my rehab groups. Among today's nicknames for people in class were, Jerry Garcia and Mr. Clean. I am sure there are many people in Mercury who see the humor in this.
Today, I worked on work and workout transition items. Oh, and the big news is that I have a new cardiologist-the prior one did not cut it. Over the weekend I went to
RF O'Sullivan's on Friday. I highly recommend the Empire Burger with rings.
My cousins and I took my Mom to the airport. We went took my Mom to Chang Sho , JP Licks to dessert (ice cream) and then dropped her off at Jet Blue departure.
Well time to upload...........Brian
The transition has begun. Currently doing cardiac and anoxia rehab, doctors appointments, ICD clinic and clinic. On Saturday, my mother is going home (if for only a short period of time) and I have my more of my independence back. I am still "T" ing it to the hospitals and clinics. My Mom will be arriving in Colorado on Saturday nite but I believe she will get on a plane next week to help my brother, who is out with transverse myelitis in Milwaukee (see last entry).
I had a good appointment from my anoxia (brain) rehab doctor and my recovery is moving forward. Managing the cardiac continuum (doctors, therapists, clinics, administration, has been more work but I am starting to feel better.
3-16
Mom left on Saturday however now my parents are going to Milwaukee on Friday the 20th of March to help my brother Glenn. My guess is that they are going to Wisconsin for awhile. The first 2 days on my own have been great although it has been a little bit more work. Today I did the brain and heart rehab thing. It is funny because there is this person in my group that makes nicknames up for people in one of my rehab groups. Among today's nicknames for people in class were, Jerry Garcia and Mr. Clean. I am sure there are many people in Mercury who see the humor in this.
Today, I worked on work and workout transition items. Oh, and the big news is that I have a new cardiologist-the prior one did not cut it. Over the weekend I went to
RF O'Sullivan's on Friday. I highly recommend the Empire Burger with rings.
My cousins and I took my Mom to the airport. We went took my Mom to Chang Sho , JP Licks to dessert (ice cream) and then dropped her off at Jet Blue departure.
Well time to upload...........Brian
Friday, March 6, 2009
21st Entry, March 6th, Mom leaves next week and my brother hit by bizarre illness
First quick update:
Based on my last blog, a number of people asked about the sandcastle competition in Revere. Below is the link:
http://www.reverebeachpartnership.com/nessf07/index.htm
I have not started cardiac rehab and am starting to get stronger. The cardiac care portion of recovery remains unstable but is being addressed. My memory therapy and rehab has been great and I am continuing to make progress.
Based on this, I have been given the ok to be off of 24 hour surveillance. Therefore my mother is leaving next Thursday. To all of you who have not had the experience of living with a parent after age 25 for 2 months or more, I can tell you it has been an experience. It has been very very helpful and at times very trying but I do appreciate it. I bought her ticket for tomorrow but she asked me to change for next week, because she wanted to talk to thank some of doctors next week (I have appointments galore). My father has been wifeless for 2 months so I hope he is ready because my Mom is coming home.
My brother is starting to be treated for transverse myelitis; yes it is one of those bizarre diseases that few people have. He got admitted to a hospital on Feb 27 and released on March 2. Transverse myelitis (TM) is an inflamation of the spinal cord. He will be out of work at least 5 weeks (until 4-8) when he sees his doctor. He is treated with steroids. Those of you who know my brother appreciate him for his rare wit, sarcasm and off the wall sense of humor (the stuffed dog). You can tell he is not himself when the characteristics above get replaced with a sense of spirituality and a more sugary personality. Transverse myelitis is a tough disease and we are all really praying for him.
Brian
Based on my last blog, a number of people asked about the sandcastle competition in Revere. Below is the link:
http://www.reverebeachpartnership.com/nessf07/index.htm
I have not started cardiac rehab and am starting to get stronger. The cardiac care portion of recovery remains unstable but is being addressed. My memory therapy and rehab has been great and I am continuing to make progress.
Based on this, I have been given the ok to be off of 24 hour surveillance. Therefore my mother is leaving next Thursday. To all of you who have not had the experience of living with a parent after age 25 for 2 months or more, I can tell you it has been an experience. It has been very very helpful and at times very trying but I do appreciate it. I bought her ticket for tomorrow but she asked me to change for next week, because she wanted to talk to thank some of doctors next week (I have appointments galore). My father has been wifeless for 2 months so I hope he is ready because my Mom is coming home.
My brother is starting to be treated for transverse myelitis; yes it is one of those bizarre diseases that few people have. He got admitted to a hospital on Feb 27 and released on March 2. Transverse myelitis (TM) is an inflamation of the spinal cord. He will be out of work at least 5 weeks (until 4-8) when he sees his doctor. He is treated with steroids. Those of you who know my brother appreciate him for his rare wit, sarcasm and off the wall sense of humor (the stuffed dog). You can tell he is not himself when the characteristics above get replaced with a sense of spirituality and a more sugary personality. Transverse myelitis is a tough disease and we are all really praying for him.
Brian
Sunday, March 1, 2009
20th Entry, March 1st, Warning BWD tomorrow and the 11 items I want to do in Boston over the next 365 days
If you have not heard it yet, we are having a BWD tomorrow. All over TV, my neighbors, my friends and even my mother have warned me about it. I have heard it will be "anywhere from 7"-18" and everything will be at at standstill." The WAHs will be out in droves tomorrow. I have SLP, OT and Cardiac rehab tomorrow. Hopefully everyone will show up.
Today I went to the National Indoor Track and Field Championships in Boston. As I sat and watched the events, I thought to myself that there was other items like this that I needed to do
in Boston over the next 365 days. So from March 2nd 2009 to March 1sth 2010 here are the 11 things I want to do in Boston in no certain order.
1)Take the red line to the silver line to the airport. I have alway done red line to green line to blue line and this seems easier and I have never ridden on the silver line.
2)Take the Fung Wah or Bolt from Boston to NYC.
3)Cycle Cape in a day starting in Boston.
4)Go to Santarpios for Pizza in East Boston.
5)Try a new Irish Pub a month. The old stomping grounds are getting old.
6)Go hear Irish music once over the next year in Boston. (Prefer if it was the Cheiftans or the Corrs but could go with someone more local).
7)Go see the Beanpot tournament.
8)Go sailing in Marblehead and go to Maddies Sail Loft afterwards.
9)Go to a Patriots training camp and a Patriots game.
10)Go hear a concert in Symphony Hall
11)Go to Revere Beach during the National Sand Castle Competition
This looks like a good Boston posting
Today I went to the National Indoor Track and Field Championships in Boston. As I sat and watched the events, I thought to myself that there was other items like this that I needed to do
in Boston over the next 365 days. So from March 2nd 2009 to March 1sth 2010 here are the 11 things I want to do in Boston in no certain order.
1)Take the red line to the silver line to the airport. I have alway done red line to green line to blue line and this seems easier and I have never ridden on the silver line.
2)Take the Fung Wah or Bolt from Boston to NYC.
3)Cycle Cape in a day starting in Boston.
4)Go to Santarpios for Pizza in East Boston.
5)Try a new Irish Pub a month. The old stomping grounds are getting old.
6)Go hear Irish music once over the next year in Boston. (Prefer if it was the Cheiftans or the Corrs but could go with someone more local).
7)Go see the Beanpot tournament
8)Go sailing in Marblehead and go to Maddies Sail Loft afterwards.
9)Go to a Patriots training camp and a Patriots game.
10)Go hear a concert in Symphony Hall
11)Go to Revere Beach during the National Sand Castle Competition
This looks like a good Boston posting
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